NCHPEG

 
 
You are here:: Staff
 
 

About the NCHPEG Staff

E-mail Print

contact icon

Contact the NCHPEG Staff

 


joan scottJoan A. Scott, MS, CGC

Chief Executive Officer

email joan scott

Ms. Scott is the Executive Director of the National Coalition for Health Professional Education in Genetics (NCHPEG) where she leads the national effort to promote health professional education and access to information about advances in human genetics, and a Research Scientist in the Berman Institute of Bioethics at The Johns Hopkins University where she studies public and stakeholder attitudes about genomics.

Ms. Scott’s career has focused on the application of genomic discoveries to health care. She is a certified genetic counselor with more than 30 years experience in clinical genetics, genetics education, laboratory medicine, the biotechnology industry, and the ethical, legal, social, and policy implications of advances in genomics. Prior to coming to NCHPEG, Ms. Scott was Director of the Genetics and Public Policy Center at Johns Hopkins University which was established to fill an important niche in the science policy landscape. There she led the Center’s efforts to address policy issues related to advances in genetics, genetic testing quality and oversight, and public engagement in genetic research.

Prior to coming to the Center in 2002, Ms. Scott was a director in a GeneLogic, Inc. overseeing the operations of a large biorespository for use in genomic discovery. She also has served as general manager and director of Genetic Services at the clinical diagnostic lab OncorMed from 1994-1998. Clinically, she has practiced in a variety of academic, outreach, and private practice settings, including pediatric, adult, and reproductive genetic clinics.

Ms. Scott is a past president of the National Society of Genetic Counselors and founding member of the American Board of Genetic Counseling. She has served on numerous national committees and work groups including the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group; the Secretary’s Advisory Committee on Genetics, Health, and Society Task Force on DTC Genetic Testing; the Maryland Insurance Administration Workgroup on Genetic Testing; the National Cancer Institute’s CaHUB Advisory Committee; the Center for Translational and Policy Research on Personalized Medicine Advisory Committee at the University of California, San Francisco; and the Genetic Alliance Biobank Advisory Board.

Ms. Scott holds an M.S. (Human Genetics Program) from Sarah Lawrence College and a B.A. in Anthropology and Zoology from Kent State University. She has been certified by the American Board of Medical Genetics with a subspecialty in Genetic Counseling, and was recertified by the American Board of Genetic Counseling in 2006.


Dolores Astroth

Administrative Assistant

email dolores astroth

 


emily edelmanEmily Edelman, MS, CGC

Project Director

email emily edelman

Ms. Edelman is a board certified genetic counselor and project director at NCHPEG. Her work at NCHPEG focuses on the development of targeted education programs and clinical tools in genetics for healthcare providers, and includes projects in prenatal family history, neurology, colorectal cancer, and evaluation of genetics education. Prior to joining NCHPEG in 2009, Ms. Edelman was a genetic counselor at the Genomic Medicine Institute at Cleveland Clinic, where she had roles in cancer genetic counseling, cancer research, and family health history and personalized medicine initiatives.

 


altTherese Ingram Nissen, MA

Senior Instructional Designer/Technologist

email therese ingram nissen

Therese Ingram Nissen is the Senior Instructional Designer for the National Coalition of Health Professional Education in Genetics. For the last 15 years, she has served as an instructional technologist, web designer/developer, trainer, and instructional designer for diverse learning projects in healthcare, higher education, and government. Therese specializes in eLearning, information architecture, and user interface design. She earned a master’s degree in Information and Learning Technologies at the University of Colorado Denver Health Science Center and was an instructional designer/developer at the University’s Center for Innovations in Training Technology.

 


kate reedKate Reed, MPH, ScM, CGC

Project Director

email Kate Reed

Kate is a board certified genetic counselor and project director at NCHPEG.  She also has a background in public health genetics.  Her work at NCHPEG includes leading the development of a continuing medical education course for physicians on integrating genomics into practice at a community hospital in California.  Her other projects include point-of-care tools for non-geneticist providers on genetic conditions (GeneFacts), hereditary colorectal cancer program for primary care providers, and a program on genetics for social and behavioral science researchers.  In addition to her work at NCHPEG, Kate continues to work clinically with children and adults in the neurology department at Johns Hopkins Hospital.


Joseph McInerneyJoseph D. McInerney

Director Emeritus

email joe mcinerney

Joseph D. McInerney received his MS in human genetics and genetic counseling from the State University of New York at Stony Brook, in 1976. He then spent more than two decades at the Biological Sciences Curriculum Study (BSCS), in Colorado, where he was director for 14 years and wrote textbooks and other educational materials in biology, with a focus on genetics and evolution.

From October 2000 to August 2010, McInerney was executive director of NCHPEG. As director emeritus he continues to work with the staff on the development of educational materials in human genetics and genetic medicine for a broad range of health professionals.

McInerney is a Fellow of the American Association for the Advancement of Science, and former member of the editorial boards of the Quarterly Review of Biology and Community Genetics. He has received the Award for Excellence in Human Genetics Education, from the American Society of Human Genetics; the Natalie Weissberger Paul Award for National Achievement, from the National Society of Genetic Counselors; the Art of Advocacy Award, from Genetic Alliance; the Special Recognition Award, from the National Human Genome Research Institute; and the Michael J. Scotti, Jr. Award, from NCHPEG.



NCHPEG Staff Publications

Roter DL, Edelman E, Larson S, McNellis R, Erby L, Massa M, Rackover MA, McInerney J.  Effects of online genetics education on physician assistant interviewing skills. JAAPA 2012; 25(8): 34-41.     
 
McInerney JD, Edelman E, Nissen T, Reed EK, Scott JA. Perspectives: Preparing health professionals for individualized medicine. Per Med 2012; 9(5):520-37.
 
Kaufman DJ, Bollinger JM, Dvoskin RL, Scott JA. Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing. J Genet Couns 2012; 21(3):413-22.
 
Manolio TA, Weis BK, Cowie CC, Hoover RN, Hudson K, Kramer BS, Berg C, Collins R, Ewart W, Gaziano JM, Hirschfeld S, Marcus PM,Masys D, McCarty CA, McLaughlin J, Patel AV, Peakman T, Pedersen NL, Schaefer C, Scott JA, Sprosen T, Walport M, Collins FS.  New Models for Large Prospective Studies: Is there a Better Way? Am J Epidemiol 2012; 175(9):859-66.
 
Heald B, Edelman E, Eng C.  Prospective comparison of family medical history with personal genome screening for risk assessment of common cancers. Eur J Hum Genet 2012; 20(5):547-51.
 
Bollinger JM, Scott JA, Dvoskin R, Kaufman D.  Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.  Genet Med 2012; 14(4):451-7. 
 
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christmas MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, LeRoy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med 2012; 14(4):361-84. 
 
Bradley LA, Palomaki GE, Bienstock J, Varga E, Scott JS. Can Factor V Leiden and prothrombin G20210A testing in women with recurrent pregnancy loss result in improved pregnancy outcomes?  Results from a targeted evidence-based review. Genet Med 2012; 14(1):39-50.
 
Devaney SA, Palomaki GE, Scott JA, Bianchi DB.  Noninvasive fetal sex determination using cell free fetal DNA: a targeted evidence review. JAMA 2011; 306:627-636.
 
Terry SF, Horn EJ, Scott JA, and Terry PF.  Genetic Alliance BioBank – A Novel Disease Advocacy-driven Research Solution. Personalized Medicine 2011; 8:95-105.
 
Werner-Lin A and Reed K. Social Work and Genetics. In S Gehlert & T Browne (Eds.), Handbook of Health Social Work (pp.557-589). New Jersey: John Wiley & Sons, Inc.
 
Edelman E, Eng C.  A practical guide to interpretation and clinical application of personal-genomic screening results.  BMJ 2009; 339:b4253.

McInerney, J.D. The teaching of evolution. Ciencia Hoy (Argentina) 19(113): 76-83, 2009. McInerney, J.D. and Faucett W.A. PAs and the practice of genetic medicine (guest editorial). Journal of the American Academy of Physician Assistants 21(5): 14, 2008.

McInerney, J.D. Genetics education for health professionals: A context. Journal of Genetic Counseling 17(2): 145-151, 2008.

Harvey, E.K., Fogel, C.E., Christenson, K., Peyrot, M., Terry, S.F., McInerney, J.D. Providers’ Knowledge of Genetics: A Survey of 5,915 Individuals and Families with Genetic Conditions. Genetics in Medicine 9(5): 259-267, 2007.

Guttmacher, A.E., Porteus, M.E., McInerney, J.D. Educating health-care professionals about genetics and genomics. Nature Reviews Genetics 8: 151-157, 2007.

McInerney, J.D. Education in a genomic world. Journal of Medicine and Philosophy 27(3): 369-390, 2002.

McInerney, J.D. Genes and behavior: A complex relationship. Judicature 83(3): 112-115, 1999.

McInerney, J.D. Why biological literacy matters: A review of commentaries related to The Bell Curve: Intelligence and Class Structure in American Life. The Quarterly Review of Biology 71(1):81-96, 1996.